En route to Phoenix this week, I discovered an article on ground-breaking research by Dr. Paul Alan Cox into what scientists call the “tangle diseases”.
Alzheimer’s, ALS or Lou Gehrig’s disease, Parkinson’s, Lewy’s Dimentia, Pick’s disease and supranuclear palsy are all caused by a build-up of placque and misfolding of the proteins in nerve cells.
Cox, who has studied this affect in several countries over a number of years has established research that may suggest that an amino acid known as L-serine could prevent or slow the onset of tangle diseases.
Cox believes another amino acid called BMAA, when consumed in massive amounts becomes a toxin, replacing L-serine. The absence of L-serine then allows the breakdown of proteins, causing the build up of placque and killing nerve cells.
He found one society which was free of tangle diseases.
“Centenarians walked as gracefully as ballet dancers,” Cox reported. He found their diet was rich in seaweed and tofu, two foods known to contain high levels of L-serine.
L-serine is available as a powder through Amazon.
L-serine is also a natural component of tofu, seaweed, sweet potatoes, and author Jay Heinrichs adds, “even bacon”.
Currently the FDA is looking into the sale of L-serine as a supplement.
The information in this article comes from the article “The Storied Man” by Jay Heinrichs in Southwest, the Magazine. September 2016 edition.
I have a good friend, Joy. The other day we were having tea and something I said, I can’t remember what, prompted her to say, “Maybe you’re grieving Chris already. Is that possible?”
I had been an hour late for our meeting because I read the clock wrong. Not once, but several consecutive times as I glanced at it. And when I got there, realizing how late I was, I burst into tears.
My husband has the most pervasive case of coronary artery disease his cardiologist has ever seen. Chris had his first big heart attack in 1993 and since then, events and procedures have constantly reminded us of the fragility of his life. That’s stressful.
It’s hard to write about this anxiety, about how it impacts me.
What spousal caregivers relinquish from their own lives in caring for their spouses, can create a sense of loss.
Added to that is the certain knowledge the future is going to hold something entirely different for us—to a large extent, an unknown quantity.
Alma Vaugeois, a clinical psychologist and counselour, tells me caregiving for the terminally ill is living in the uncertainty of what is going to happen and when.
People feel helpless in the face of the unknown. They can also feel loss long before anyone passes, Alma told me.
For me, these voluntary and involuntary life changes create a wholly natural and very unwelcome sense of loss.
Parts of our lives must be let go in order for us to do what in all good conscience we feel we must, what in our love for our spouses we are driven to do.
We all know what must lie ahead in terms of our spouse’s condition.
And people feel guilty thinking about the future, Alma related.
In short, we deal with guilt and grief while caring for our loved ones.
Perhaps that is what Joy saw in me that day. Grieving for what I am losing even now, while he is still living.
I wouldn’t change my choices. But it seems I can’t do anything about the emotional fallout that accompanies them, either.
And I wonder how many others have experienced this loss? And how many have covered up these feelings out of guilt or shame?
You can learn more about Alma from her website at: www.almavaugeois.com/
For twenty-one years now I have lived with a man who daily reminds me he is dying.
This has led to a split life for me. I find myself constantly in conflict, constantly questioning my priorities. What should I do next? Spend time with him? Or get on with my work—whether it be writing, housework, or bookkeeping. Or time with friends.
I talked with clinical counselor, Alma Vaugeois about the frustration of constantly having to forego choices unrelated to the caregiver role.
Having to constantly focus on the person being cared for can mean giving up aspects of one’s own life, Alma explains.
Because all of your energy is going into him, there will be a sense of loss for yourself.
This rings true with me. I do feel that I have somehow lost ‘me’ somewhere in that deep chasm between the immutable ‘now’ and the looming ‘then’.
Somewhere between “life with Chris”and the looming future of “life after Chris” my own life seems to have slipped away.
It is ironic that even as delicate as his health is, he can travel with his children without his timelines being affected by any aspect of my life, whereas I have put off a number of trips in consideration of his next procedure, or his present fragile condition.
And I ask myself, are these the ‘fear based’ decisions that self-help gurus preach against? Or are they merely practical considerations in light of his medical history and current situation?
I need to figure out how to carve out time for me, to see some aspect of myself as blooming, even if only in inner space.
I need to find a way to feed my passions while still caring for him to the best of my ability.
Because if I toss my entire life to the wayside in my intent to care for him, I will become resentful and bitter.
I will fester in the role of caregiver. And me festering? It ain’t a pretty picture!
To learn more about Alma Vaugeois, go to www.almavaugeois.com
With this diagnosis, the admission that all that can be done now is medicate to make him more comfortable in a deteriorating condition, his world has radically altered.
And shock waves reverberate in mine.
For twenty one years, ever since his first heart attack, this man has told me every day that he is dying. Over the years I have come to take it lightly.
We’re all dying, I might reply. Or:
For someone who’s dying, you’ve outlived an awful lot of people.
But now I must take this notion seriously. No more light hearted bantering. He will grieve. His response to this diagnosis will be an attitude he owns. It is not for me to dictate or project.
And as for me? As selfish as it seems, I must be practical. Find out exactly how much money I will have in pensions each month, make projected budgets, determine which things need to be bought out or paid off now while there is still another income coming in.
There are funeral expenses. How much will that be? Will the life insurance cover it? What about our debt?
He has agreed to cremation but I know in his heart he wants to buried and we do have the cemetery plots. Will I be able to afford to bury him and still have enough to tide me over for the few months before the survivor’s pension and the income supplement kick in?
I need to be prepared. And to help Chris prepare. God help us both.