Tag Archives: reflections

Letter to Chris

Dearest Chris,

As of yesterday, it has been three years since that fateful day when my cell phone rang and I answered, and you said “Come home, Marg.  Come home NOW.”

I left my groceries on the checkout counter and rushed home.  One last kiss and you were gone.

I wasn’t sad then.  I felt oddly congratulatory.  As if you had escaped.  You surely found freedom.  Freedom from pain, from the physical limitations which your illnesses imposed upon you.

You were Chris, bigger than life and always wise and funny and “up” for us.  Right to the end.

I couldn’t grieve for you.  You were off on a whole new adventure, a new realm.  It was we who found ourselves poorer for your passing, our lives less brilliant and comforting.  Our ration of love depleted.

It’s hard to believe sometimes that three years have passed, and in other ways, it seems like a lifetime ago.

I will always think lovingly of you.  How your greatest pleasure was taking care of people, whether it was our children and grandchildren, or the tenants at Mathew Court, or the kids who worked as painters for you.

It used to annoy me that you would dig into the garbage bin to collect and give refundable bottles to the homeless.  But I was someow proud, too, of that and of how you came with me to help at the Sisters of Atonement, making and serving hot dinners.  Or spreading butter and the nun’s special blend of fish or stale cheese slices or peanut butter on bread for lunch time sandwiches in the big soup kitchen.

I never sit in a church pew without remembering how you took my hand in yours and held it on your thigh.  If I close my eyes I can still feel the smooth fabric of your slacks, the warmth of your body heat.

Whenever we went out, you always made sure we had fun.  You could really dance.  Before your arteries shut down, before your legs went, you danced up a storm.  Jive, waltz, polka; it made no difference.  You were graceful and strong.

You loved NFL football and world history and crime TV.  You loved us.  You loved me.

And that’s a gift that I will always be grateful for.  A gift that I will take to my grave, regardless of where my journey may take me now.

And for that great love, I thank you.  More than I can ever say.

Love always,

Marg.

Caregiving: Reflecting on Attitude

What is of greatest benefit for a caregiver?

For myself, time to reflect upon how to balance my desires and expectations with the caregiving role I had assumed for another.  This was of most benefit to me. 

It was after the death of my father that I came to experience the positive change in attitude that this time of reflection can bring.

Mom and I had never been close.  We never had what is viewed as the traditional ‘mother-daughter’ relationship.  In fact, we’d had strong differences of opinion, and unresolved situations from our past.

But after the death of my father, Mom had nowhere familiar to go.  And she was already in the early stages of dementia.

While we lived in a big city and she came from a small rural area, I felt she would be more comfortable living with my husband and I than with strangers in a rest home.

But could this work?

After a great deal of thought I came to the following decision:  If I loved Mom, and cared for her well-being enough to want her to come and live with us, then I was clearly able to, if not forget the past, at least to forgive her for her part in it, even if this remained unspoken.

And if I loved her that much, then we would be okay.  I would have no expectations of her.  I would see what she could manage on her own and with what she needed help, and move forward from there.

That decision set my attitude.

Letting go of the past opened the way for Mom and I to eventually establish a curiously close relationship, one which had eluded us during my youth, and to heal the wounds we both had suffered in our mother-daughter angst.

Years later, as my husband, Chris, grew weaker and his heart disease progressed, I knew I needed help.  I availed myself of what the local public health agency had to offer, but it was very limited.

In church one Sunday the priest told us to reflect upon whatever special blessing we required.  I knew what I needed:

I needed God’s grace to see me through to the end of my husband’s illness.  It is one thing to do what is asked of us by life, but it is another thing entirely to do it with love and joy.

No, I was not always cheerful and loving!  I’m also human!

But at times when I caught myself ‘tensing’ into a reactive and unpleasant state I’d remember my prayer for grace, breathe out my tension and relax into a more loving approach; one that benefitted both myself and my husband.

We don’t have much time to ourselves; at least, I didn’t.  But once or twice I had the time to think deeply about my position as caregiver.

And I believe it was the result of the thoughts generated, the decisions made and the attitude engendered by these times of contemplation that made my caregiving experiences positive.

It was in these times of reflection that I came to realize it is not the person in my care who determines how I feel about looking after them.  That comes from within me.

I learned that I decide what my attitude will be, what presence I will bring into the room.

 

Life After: A Caregiver Reflects…

I have lost so much.  Not only the love of my life, but a way of life.  I confess to difficulties.  Challenges.  Sobbing through movies is the least of my problems.  I am lost.  Mentally wandering in a wilderness of change.

I make decisions.  Immediately regret them.  Rethink them.  Why am I the last person on my list of priorities?

I must give myself time.  Pamper myself a bit.  So I work and then rest.  Put my feet up.  Take my salad and cheese in my room on a tray, like my Grandmother used to do.  Eating on the bed where Chris and I had so many meals.  I can’t wait til I can eat at the table again, I used to think.  I was wrong.  I want to eat where we ate.

I go onto Facebook and find out that two people in my old business network group have become bestsellers on Amazon.  And I was the writer!  MY royalties trickle in.  I congratulate them.  There is no animosity toward them, only admiration for their success.

Would I like to be a best seller on Amazon?  Absolutely.  But I do not regret devoting my time to Chris.  That has given me peace.  The anguish I feel at being surpassed is not relevant.  To really work at writing—that I can do any time in the present or future.  To be Chris’ caregiver?  Was a limited engagement.  Immediate. Imperative.

I walk.  Even with an inflamed Achilles tendon, I have decided to park the car for the summer.  Not to insure it.  To make myself walk or use transit instead of driving.  To save money.  To think twice before zipping off somewhere.

The financial curve is huge.  Living without his pensions.  I am not complaining; but I am concerned.  I need my own space. My apartment is a refuge.

And I know this about myself:  I cannot share with a friend, as my daughter does. And I will not live with another family member—a daughter or a sister or a cousin.  I cannot be the ‘poor relation’ living off the charity of another, however kind and generous they may be.

Besides, I like solitude.  I love my home.  Memories of life with Chris echo in every facet of every room.  So maintaining my home will always be a financial priority.

Slowly with each decision, my life changes as I modify budgets, change how I do things.  I’m shaping a life on my own.

It isn’t easy.  I’ve been married since I was seventeen. Now I must make it on my own, know that I have the discipline, courage and commitment to manage my life and manage it well.

My life with Chris gave me the tools and resources I need.  I just have to use them in the best possible way.  Ah, Chris!  Miss you, Babe.