Tag Archives: emotional issues spousal caregiving

Caregiver? Caretaker? Part 3.

Final Instalment of a continuous narrative by Gemma Tammas.

While we are regularly visiting his doctors, two more inflections added to his failing health. Hearing loss, and cataracts. Many times, I have to shout at him because his hearing aid is not in its place.

Only yesterday, he was telling me about a woman, who was interviewed on the news, saying she traveled to San Diego to learn about a diet. Tom told me that woman became a nun.

“That’s what she said,” he insisted and it was no point to dissuade him otherwise. It wouldn’t have changed his mind anyway.

I help him to read as his eyes get tired and every phone call fell on my shoulders as Tom’s voice became scratchy, mumbling his words.

Losing his health big time along with his driver’s license, still he is asking “How can I help you?”

When I give in and tell him what to do, he forgets it and I have to control myself not to tell him off.

His memory is failing but he still remembers our phone number in Hungary fifty years ago.

When we are going shopping, he gets out of the car and starts shuffling in a different direction. I have to run after him grabbing his hand.

My life, our life, changed.  We had to give up small pleasures like walking in the field for an hour with our dog, Heidi, going to the seashore for a stroll.

Heidi, our ten year old Rottweiler, recently became paralyzed from her waist down, unable to take only a few steps before she collapses, then I have to lift her up and put her on her feet.

Some days I question myself. Why, why me who is burdened to do all these things. Then I look at Tom, and I see in his eyes the suffering, the hopelessness, but still a tremendous willpower to live.

Then I pat Heidi’s head and I feel her energy passing through my body, and even in her crippled condition, she gives me strength to go on, to take every day as it comes and enjoy it to the fullest.

My heart aches, when I see both in reclining health, but still, I feel fortunate to able to take care of them.

Caretaker? Caregiver? I rather call myself a wife and mother.

Caregiver’s Dilemma: Is The Patient Playing It Up? One Caregiver’s Thoughts.

I confess there are times when I think Chris is playing it up.

The heavy breathing, the grunt of exertion as he lifts the water jug into the fridge.  He leans heavily on the counter, his breath coming almost in gasps.  Finally his breathing settles down.

He asks me to carry his mug of coffee into the bedroom for him, asks if I’ll make a cup of tea and join him?  I’m thinking he can carry his own mug, and I have work to do.

Then I realize how very ungracious that thinking is.

The man has severe coronary artery disease.  His cardiologist who has had extensive experience with this condition has put in writing that it is the most severe and pervasive he has seen in his practice.

That was over a year ago, and the only thing that has changed is also documented:  it has gotten worse.

So even if the man wants to ham it up a little, who am I to judge?

Maybe he just wants me to have the audible of what’s going on inside him, of how he feels as opposed to how he seems.

This accompaniment is not available to others, only myself, and I wonder if I shouldn’t feel somehow privileged to be the only one allowed this very personal insight into his world.

 Or maybe he is just playing me.

 I’ve come to realize it really doesn’t matter.  Whether it is a true reflection of his feelings or just a show for sympathy is irrelevant and unknowable.

All I can ever know looking back from one day in the future, will be how I responded.

Did I respect his pain?  Accept the way in which he has chosen to handle his condition?  Allow him dignity in the face of his body’s response to his illness?

Did I give him the comfort he reached out for?  Offer the humour that turns a tough moment into one where he ends up cajoling me?

In this journey we are taking here together, I have come to one irrevocable conclusion: I must always accept Chris’ outward manifestation of his discomfort as valid.

And respond accordingly.

Yours Truly,

Margaret Jean